Wednesday, May 14, 2014

We are in Chicagoland this week. Eli is doing well, the last couple of weeks weren't the best for trying food. For some reason he had no interest and was starting to let his fear take hold again. BUT, yesterday he tried Gogurt (yogurt in a tube) AND Cheese Fries! He didn't care for the gogurt, but he did seem to like the cheese fries. This was colby jack cheese melted on the fries, so it wasn't a sauce. I'm so proud of him. I know how hard it is for him to try new things and he did a great job. The neurologist is doing a study and has Eli wearing different colored glasses on top of his head. It's amazing how this helped. He first used the red glasses when trying the gogurt, and it didn't go so well, but then we switched to an Aqua color and he tried it again and he said it was better. I don't understand how this all works, but I'm thrilled that it does work!!

Please be is prayer with us as we have to make some decisions regarding his medication. The one main side effect is weight gain which has been as issue for Eli. He has put on 19 pounds now since starting the meds and it doesn't seem to be stopping. Eli is getting very self conscious about the way he looks and I hate seeing him worrying about it. We will be talking with the doctor on Thursday, so please pray that we can all agree and decide what would be best for him.
We are still taking donations for the garage sale. I'm hoping we can make a good amount because the money we have for therapy is running out fast. But I know God will continue to open doors and make this happen. Thanks so much for all your prayers and support.

CLAYTON: So Clayton doesn't have a food phobia, but since this goes to a lot of family I thought I'd add an update on him too. Clayton had a concussion last year and after talking with our neurologist about his learning struggles since then she highly encouraged us to bring him in to see her. There are a number of things going on with his eyes and brain that are not working together as they should. He now has glasses and will be seeing Dr. Donalee Markus to work on getting things back to normal. Here is our prayer request. Donalee is a wonderful doctor and has been working with us on payments and discounting her services. We could barely afford Eli's therapy and now we have to add Clayton. She is being very generous, but it's still costing us a lot of money. Please pray the God will continue to open doors for this to work out financially. Thanks so much for all your prayers.