I know it's been a while since I've posted an update. I feel like we've been in a whirlwind and I'm barely keeping my head above water. We have been working on his exercises, and keeping up with the brain puzzle work the neurologist gave us. I wish I could say he has been trying new foods, but that has been a struggle.
Since we changed medication last month we have seen an increase in anxiety and lack of concentration. This doesn't help Eli when it comes time to try new foods. Also, he has stopped eating pizza rolls and yogurt...At this point I'm banging my head against the wall wondering if any of this is helping. Then I realize we have made some good steps forward. Baby steps, I must remember baby steps. It's so hard to watch him struggle when all I want to do is make him better.
So, what do we do? This treatment plan is brand new for this eating disorder. The treatments themselves have been around for years, but using them to treat this disorder is new. We are breaking ground on this and at times that puts us in a difficult position. We are very hopeful that it will work, but when we have struggles we don't have any direction on what to do next. This is where lots of prayer is needed! We again need to make decisions on medication. Do we change medication again, do we go off the medication and see how the other therapies work without it, or do we give the current medication more time? Please pray that Paul and I will make the right decisions.
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